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Team Ella!

Mike & Lauren Fasolo / CHD2 Awareness Day 2024

To raise funds for research in support of treatment and a cure for all those affected with CHD2 related disorders.

  • $10,545

    Raised

  • $12,000

    Goal

  • 56

    Supporters

  • 0

    Days Remaining

Team Members

Recent Transactions

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    Katie Guerin

    $50.00 / 62 days ago

    Thanks for all that you do supporting Rare Disease!

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    Meghan Lynch

    $51.45 / 63 days ago

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    Maureen Kuehne

    $205.80 / 64 days ago

    Thanks for allowing us to donate to this wonderful cause!

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    Natasha Carsello

    $411.60 / 65 days ago

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    Marielis Manzur

    $102.90 / 66 days ago

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    Christine Kipp

    $102.90 / 66 days ago

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    Jeanne Johnson

    $102.90 / 67 days ago

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    Courtney Shaw

    $102.90 / 68 days ago

    Let’s find a cure together! I am so grateful to have Ella in my life. She makes my Tuesday’s so much brighter ☀️

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    Leila Azarbad

    $102.90 / 68 days ago

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    Dana Mali

    $51.45 / 69 days ago

    Go Ella, Go! Thanks for your leadership and bringing awareness.

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    Don Hubbard

    $205.80 / 73 days ago

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    Sally Imburgia

    $257.25 / 74 days ago

    Go Team Ella!

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    Dawn Roche

    $102.90 / 87 days ago

    Hugs and prayers to all!

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    Julie Lynch

    $102.90 / 89 days ago

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    Devin Huber

    $257.25 / 90 days ago

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    Molly Byram

    $51.45 / 91 days ago

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    Pamela Caine

    $514.50 / 91 days ago

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    Jean Nauman

    $51.45 / 92 days ago

    I am so inspired by Ella and her parents for not giving up on finding a cure! I will be praying for Ella! She is changing lives!!

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    Megan Bishop

    $25.73 / 93 days ago

    So happy to be a small part of “Team Ella”, you are true inspiration!

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    Bridget Long

    $257.25 / 93 days ago

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    Thomas J Fasolo

    $1,029.00 / 93 days ago

    Ella . we are all fighting to find a cure. Keep Strong.

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    Sherry Roadman

    $102.90 / 93 days ago

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    Cory Briggs

    $102.90 / 93 days ago

    Thank you, Fasolo Family for all your hard work in spreading awareness for CDH2! Ella is such an inspiration!

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    Anonymous

    $25.73 / 93 days ago

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    Tracy Boddy

    $308.70 / 93 days ago

About Team Ella!

At age 6, Ella was diagnosed with a rare form of epilepsy called Jeavon’s Syndrome, and ever since then we have been on a journey to find the right treatment and a hopefully an outright cure. In 2019, we learned through a comprehensive genetic panel that she had a de novo (non-genetic) mutation in her CHD2 gene causing her epilepsy and other disabilities, and that it was only just recently identified condition without a lot of available information about it yet. The diagnosis led us to a patient and caregiver community, and in 2020 via those connections a group of highly dedicated parents and supporters joined together to form the non-profit organization Coalition to Cure CHD2 (CCC). Mike currently serves on the board of CCC, and we are pleased to share that the organization accomplished much in its first three years. Key updates since last year’s awareness day include advancement of several research engagements, our first ever family & research conference, and the arrival of a dedicated executive director to help accelerate even more that the organization accomplish with your generous donations. Through it all, CCC’s mission remains to improve the lives of those affected by CHD2-related disorders by funding research necessary for finding a cure. With your generous donation, please know that unequivocally, CCC and its board of directors will use your kind donation wisely and with the purpose of ultimately improving lives through treatments and progress to our end goal: A CURE! Thank you so much, Lauren & Mike