Corrine's Crew
Justin Schueler / CHD2 Awareness Day 2024
Corrine was diagnosed with CHD2 myoclonic encephalopathy in March 2023 at 18 months old. Despite combinations of antiseizure medications, she continues to have seizures. Corrine also experiences low muscle tone (leading to difficulty walking), intellectual development delays, and an independent metabolic disorder that requires a low protein diet and restricts her medication options.
However, in the face of these challenges - Corrine continues to progress. She discovers new words each week and enjoys spending time with her brother (age 5), family, and school friends. She is often found with her Elmo dolls, dancing to music, and visiting the fish/reptile building at the zoo (her favorite)!
Being told your child has a rare disorder with no treatment options was terribly difficult and left us feeling lost as parents. Finding Coalition to Cure CHD2 (CCC) has been incredibly uplifting for our family. It has allowed us to connect with other CHD2 families, speak to researchers in the scientific community, and align our combined efforts to FIND A CURE!
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$6,222
Raised
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$1,500
Goal
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50
Supporters
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0
Days Remaining
Team Members
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Nicole Schueler
$2,500.48
Recent Transactions
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Jason McMaster
$257.25 / 74 days ago
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Karyn Frick
$51.45 / 93 days ago
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Sarah Wegner
$51.45 / 94 days ago
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Rosy Zoller
$102.90 / 94 days ago
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Jake Wendtland
$102.90 / 94 days ago
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Steve Hunt
$10.29 / 94 days ago
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Carrie Schepp
$51.45 / 94 days ago
Sending good vibes and positive thoughts for Corrine and her family as they navigate the road ahead of them <3
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Justin Schueler
$514.50 / 95 days ago
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Buska Janet
$360.15 / 96 days ago
Our hearts go out to all of you. Corrine is a strong willed girl together her and Elmo will conquer this. Love,The Buska family
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Paul and Diana Johnson
$102.90 / 97 days ago
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Pat Madden-Ripp
$20.58 / 98 days ago
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Home Garman
$51.45 / 100 days ago
I had no idea you have been navigating such a challenging rare disease diagnosis. Sending all of my love and support as you continue this journey with beautiful Corrine and your family. No doubt she has her mama’s toughness. Cheering her (and you all) on!!!!
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Terry Zoller
$102.90 / 101 days ago
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Marla Feldman
$25.73 / 101 days ago
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Brian Pfeifer
$102.90 / 101 days ago
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Emma Schueler
$308.70 / 102 days ago
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Deborah Pfeifer
$102.90 / 102 days ago
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